Dancing with Lucas

I write this blog with full humility and caution, and we don’t want the prayers to stop. I do want you to stop though and read this, please just stop for a second.

Thank you for praying for our boy. Our Lucas. Thank you for praying for our Dylan. Thank you for praying for our family. Thank you for reading these blogs and going into action.

Lucas’ counts are improving.

His cells are getting to know Dylan’s.

They are dancing with each other.

Its not a straight, linear road to the top. Its not without pain. Its not without vomiting, fevers, chills, rashes. But the reality is that on Monday Erin and I had never seen Lucas look so sick, and today and yesterday his body is responding to Dylan’s cells. The white blood cell counts are up, the ANC counts were 820.

Lucas still doesn’t have much appetite and he slept 15.5 hours last night. They are slowly weaning him off of the morphine he was getting every 4 hours, and the Ativan that was regularly coursing through his veins. The IV tylenol is now in response to fevers, which have gone down to lower grade.

Every day I witness courage. I see him drink water more, I see him walk the little transplant unit faster. I watch his sense of humor and dry wit come out. I watch his rebirth. I witness the irony of his body being so fragile, but having the mind and life experience of an octogenarian. It honestly reminds me of Benjamin Button. The wisdom in the body of a child. A lifetime lived already, and a new life. Hope of the promise-land, which for Lucas is getting to leave the hospital right now. To feel the sun on his face. To hear a dog bark. Watch the birds fly. Play sports, lots of sports.

We don’t run victory laps, but we do celebrate this miracle that is occurring in Lucas body. The miracle of life that his sisters cells are putting in Lucas body.

Again, hesitant to get too excited, but if we can ask for prayers then we can also let you know that God hears our prayers. We can let you know that Dylan is in Austin, but she is very much a resident of 3 east at CHOP.

Please keep praying for no infections, viral, fungal. For healing rest. For nutrition. For pure healing and complete engraftment of Dylans cells. .

Thank you God for these and all of our many blessings.