Lucas -Today's Update

Thank you ALL for praying so hard for our Lucas Bear. Here’s what we know. His LP shows clear spinal fluid=no leukemia. Thank you God. Thank you Jesus. Thank you everyone in the whole wide world and above who prays for and brings light and energy to Lucas.

We, also, know from the head of Dells neurology team that, in his opinion, while there is still inflammation and white mass on his brain and very high spinal fluid pressure (still confusing to all-it caps at 35 and he was 35 going in to take the fluid out), he does not believe there is infection, bleeding or leukemia. He felt the MRI was similar to the MRI in May which was worse than the one last January. Similar but not worse. That’s good if it’s not worse. We are definitely NOT running any victory laps because we are waiting for CHOPs neurology team to assess the images. They in coordination with the Dells team now (good news) will make the final conclusion. But, it’s one step in the right direction on the neurology front. Still unanswered questions, but hopefully we will hear from CHOP tomorrow. And we are believing it will be good news….we are going to stay in the light.

We have been stressed but praying so hard. The thought of the ‘L’ word knocked the wind out of us.
We sprang it on Lucas that he was getting the MRI and LP just the other day. Nonchalantly, saying ‘oh yeah, you have to get an MRI (and under our breathe-and an LP)’. This kid is smart and we didn’t want to scare him.
This morning he asked ‘why am I getting an MRI the day after my birthday and right before Christmas?’. Answer-‘because that’s the only day they could schedule it’. I answered quickly and moved on to another topic. He knew why.

When we got to the hospital, we have a tradition, Brian tries to make Lucas laugh before going under anesthesia (Lucas hates going under and it takes it out of us watching him each time-hasn’t gotten easier despite how many times). He acts like a different doctor each time to crack him up. I, on the other hand, find a corner tuck my head between my knees and pray the rosary. Today a nurse came up to me and asked if she should get the chaplain. I looked at her strangely and said ’no thanks, this is what I do every time’. We all have our ways I guess.

Here’s the video. Lucas’s laugh is infectious always has been.

Praying for good news from CHOP.