T+100 and 12th Anniversary

Sox v Phillies

Super proud of Lucas, yesterday was T+100 and we celebrated today by going to the Red Sox / Phillies game. The good people at AKA University City got us tickets on the 4th row. It was a great exercise to take Lucas to something like this, it was something that we will always talk about, and feeling the energy of the crowd, the heat, the game, was a lot to cherish. I found myself trying to be present with the game but honestly couldn’t stop worrying about the sun, the heat, COVID. Lucas, on the other hand, had a freaking blast. He was more animated this morning than I have seen him in a long time. Chatty, funny, excited. He woke me up at 5:45am, ready to roll. “Dad, this was the first time I have gone around people like that in over a year” he said when we left mid-5th inning. I was so proud of him. He totally knows, he totally gets it.

Dreams and God

Lucas told me last night (unsolicited) about a dream he had when he was in the ICU, and intubated for 3 days. We were watching a show, The Flash, last night and there was a dream sequence and he just randomly started talking about it. In the dream there was good and evil (as he described it). The ‘good people’ in his dream were praying for him, and at first he said he wasn’t sure what to do, but he ended up going with them. God talked to him from a Red Sox blanket (which he didn’t know this because he was unconscious) which happened to be the blanket on his hospital bed. The “bad guy” was writing in blood, and was definitely upsetting to him. I tried to hold my tears back and also act ‘laid back’ while Lucas shared this story with me, I couldn’t believe the words that were coming out of his mouth. Lucas never exaggerates or makes things up, he just isnt like that.

We believe in God, we believe in the healing power of Jesus and that the angels (and your prayers) surrounded Lucas. Speaking for myself, I saw God in the room when Lucas was in the ICU. I saw the healing hand underneath his bed, and I felt tremendous peace at one point. When Lucas had his seizure I feel to my knees, completely at mercy to God, closer than I have ever felt to spirit in my life. “You got this Lucas, I am proud of you, I love you, you are the best” while I kissed his feet, weeping in prayer as Dr. Mejia saved his life.

Erin

Erin stepped up in the ICU. I couldn’t do it. Seeing his seizure crippled my ability to be there after the 3 days I had just been at the hospital, I didn’t have anything left in my tank. Erin walked in to the ICU after Lucas had his seizure, she came up immediately, we were at MD Anderson. She had a calm spirit about her. She made me feel better, her presence changed the energy in the room. I could tell that God was walking with Erin. She prayed strongly for Lucas, I went home and tried to research other centers for the next couple of days. I tried to go to the ICU but couldn’t do it like she could.

Erin was a hero for our family that day. Today is our 12th anniversary. Lucas, our little warrior made it through so many battles and now he and our family have made it through 100 days with his little sister, Dylan's, bone marrow.

Happy 100th Lucas, Happy 12th Mommy. Lets get this kid home.

Prayers:

• this week we have big tests to see if Lucas will be released, we will be calling on all to pray 8:30 PM EASTERN on Tuesday night, May 25th.

Summer 2009 — Honeymoon II