Acute Myeloid Leukemia - FLT3
We are trying to connect with all families that have had children under 10 with AML, Acute Myeloid Leukemia with the FLT3 Genetic Mutation.
Please click this Google Form to fill out information on your child or friend that had this , or read below for more information.
Lucas’ Cancer Diagnosis + Info
We created this page with a link to Google Forms to share intelligence about Lucas diagnosis, so that we can compare notes with other parents with children that had similar protocols.
Acute Myeloid Leukemia
On July 31st 2020 Lucas was diagnosed with Acute Myeloid Leukemia (AML). AML is rare, affecting less that 500 Children Per year in the United States. Lucas currently has “refractory” AML to the first cycle. Less than 5% of the 500 cases of AML have the FLT3-Non-ITD genetic mutation, which is less than 25 in the US.
Age / Ethnicity
Lucas is 6 years old, Caucasian
Mutations
FLT3 - Non- ITD N676K
RUNX1 - non germline
Healthcare Provider
MD Anderson Children’s Cancer Center- Houston, TX
Stem Cell Transplant
Once Lucas is in remission his donor will be his little sister Dylan, who is 4 years old.
Dylan- Lucas’ Donor
We are looking to meet parents of children with AML with the FLT3-non ITD mutation. Unless you are on a trial, the data on this information is opaque among treatment centers so we are combing the earth to find similar cases.
If anyone you know has children under the age of 10 that were treated in the past 3 years with Acute Myeloid Leukemia and the FLT3-non ITD genetic mutation similar to Lucas please fill out this Google form .
Thank you.